Cancer registration according to the cancer registration act from 1.1.2020

Downloads & Orders

Please see below.

Information on the introduction of the Cancer Registration Act (CRA) (June 2019)

In the future, cancer cases are to be registered in their entirety and uniformly throughout Switzerland. In March 2016, the Swiss parliament passed the Federal Act on the Registration of Cancerous Diseases (Cancer Registration Act, CRA). In April 2018, the Federal Council adopted the associated ordinance (CRO). The obligation to register under CRA/CRO and the system change for data registration in the cantonal cancer registries (CR) and the Swiss Childhood Cancer Registry (CHCR) will come into effect on 1 January 2020. All doctors, hospitals and private/public healthcare institutions that diagnose or treat cancer will be required to report selected information on specific types of cancer to the CR and ChCR from 1 January 2020. At the same time, every canton is required to set up a cancer registry or to join an existing one.

The National Agency for Cancer Registration (NACR) is a federal organisation that is responsible for defining the mandatory data structure and coding guidelines for the CRs and the ChCR. On the basis of Art. 33 CRA and Art. 36 and Art. 37 CRO, these and other tasks of the NACR were transferred to the National Institute for Cancer Epidemiology and Registration (NICER). The CRs, the ChCR, the cantons and medical societies were involved in defining the data structure. The structure of the basic and supplementary variables is thus based on a broad national consensus, international recommendations, the principles of good statistical and epidemiological practice, and legal requirements.

The various legal bases of the CRA and their implementation as well as official documents of the Federal Office for Public Health on the topic can be found in this compressed file. In June 2019 it was made available to institutions and persons which were subject to the obligation to notify according to the CRA. The address lists of the cantonal/regional cancer registries and the data structure have been recently updated.

Downloads

Dear reporting agencies

Please find here the brochures for the patient information to download and/or to order (from the 15th of January 2020).

 

Dear patients

Please find below the detailed version of the patient informations for children and adolescentsin English, as well as the short version of the patient information for adults, children and adolescents in English and in 13 further languages (from January 2020).

13 further languages