How can patients refuse the registration?
A patient must submit a refusal in writing to a cantonal cancer registry or to the Childhood Cancer Registry. The refusal must contain the following information on the patient objecting registration: first name, family name, address, date of birth, AHV number, date, and signature. The mere statement of the patient to the doctor that the registration is not desired is NOT sufficient. Forms for filing an objection are available on the webpages of the cancer registries (https://www.nacr.ch/en/partners-health-care/cancer-registries/).
Can a patient submit a refusal at any time?
Yes! No data are collected in the cancer registry if the refusal is submitted within three months from the time when the diagnosis is established. The available data are anonymised if the refusal is submitted later.
Does the patient receive a confirmation of the refusal?
Yes! The responsible cancer registry sends a written confirmation when a patient submits a refusal of the registration.
Is the duty to report still in effect when the patient has informed the doctor he/she has submitted an objection or intends to do so? Is reporting in this case not illegal?
The refusal involves the registration and preservation of data in the cancer registry, not the reporting. The service provider has the duty to report even if the patient states orally that they will submit a refusal. There is only one exception from the duty to report (Art. 6, Abs. 2, CRO). This applies when the patient submits to the doctor a confirmation of the refusal issued by the cancer registry.